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- Orphanet Reference "Orphanet (26.3.2024)"
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- tairseach um ghalair neamhchoitianta agus um tháirgí íocshláinte dílleachtacha Reference Téarmeolaithe COM-GA
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- tairseach le haghaidh galair neamhchoitianta agus drugaí dílleachta Reference Doiciméad inmheánach de chuid an Choimisiúin: SANTE-2024-00855 (teicneolaíocht sláinte/measúnuithe cliniciúla comhpháirteacha)
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- Definition acmhainn ar líne ina gcoinnítear faisnéis a thiomsaítear faoi ghalair neamhchoitianta agus é d'aidhm leis sin feabhas a chur ar an diagnóisiú, ar an gcúram agus ar an gcóiríocht i leith othair ar a bhfuil galair neamhchoitianta, agus lena ndírítear ar fhaisnéis ardcháilíochta faoi ghalair neamhchoitianta a sholáthar agus rochtain chothrom ar fhaisnéis a áirithiú do na geallsealbhóirí, agus ina gcoimeádtar ainmníocht Orphanet um ghalair neamhchoitianta, rud is riachtanach chun go mbeadh teacht níos réidhe ar fhaisnéis faoi ghalair neamhchoitianta i gcórais faisnéise leighis agus taighde Reference "Téarmeolaithe COM-GA; arna bhunú ar: Orphanet, 'What is Orphanet?' (26.3.2024)"
- Orphanet | Portal für seltene Krankheiten und Orphan Drugs
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- Definition Ressource, die das Ziel verfolgt, das Wissen um seltene Krankheiten zu sammeln und zu erweitern, um so die Diagnose, Versorgung und Behandlung von Patienten mit seltenen Krankheiten zu verbessern Reference "Orphanet > Was ist Orphanet? (17.4.2024)"
- Orphanet | Orphan Diseases Network | portal for rare diseases and orphan drugs
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- Definition online resource which gathers and improves knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases, aiming to provide high-quality information on rare diseases, ensuring equal access to knowledge for all stakeholders and maintaining the Orphanet rare disease nomenclature (ORPHAcode), essential in improving the visibility of rare diseases in health and research information systems Reference "COM-Terminology Coordination, based on: Orphanet. 'What is Orphanet ?' (18.3.2024)"
- Comment Orphanet was established in France by the INSERM (French National Institute for Health and Medical Research) in 1997. This initiative became a European endeavour from 2000, supported by grants from the European Commission: Orphanet has gradually grown to a Consortium of 40 countries, within Europe and across the globe.