Gaois

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4 results

  1. SOCIAL QUESTIONS|health|illness
    galar neamhchoitianta Reference "Rialachán (AE) Uimh. 282/2014 maidir le tríú Clár a bhunú do ghníomhaíocht an Aontais i réimse na sláinte (2014-2020) agus lena n-aisghairtear Cinneadh Uimh. 1350/2007/CE, CELEX:32014R0282/GA"
    ga
    tearcghalar Reference Faomhadh an téarma seo mar chuid de Thionscadal Lex
    ga
    seltene Krankheit
    de
    Definition Krankheit, die nur einen sehr geringen Teil der Bevölkerung betrifft Reference Council-DE auf Grundlage von Council-FR
    Comment "In der EU gilt eine Krankheit als selten, wenn sie nicht mehr als fünf von zehntausend Personen betrifft. Quelle (frz.): http://www.culture.fr/franceterme/result?francetermeSearchTerme=maladie+rare&francetermeSearchDomaine=0&francetermeSearchSubmit=rechercher&action=search (25.10.2018) vgl. auch ""seltenes Leiden"" IATE:139134 ""Arzneimittel für seltene Leiden"" IATE:885035<><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><><>"
    rare disease
    en
    Definition disease with a particularly low prevalence (i.e. affecting only a small proportion of the population) Reference "Council-EN, based on Commission Communication on Rare Diseases - Europe's challenges (COM/2008/0679 final), CELEX:52008DC0679/EN"
    Comment "The EU considers diseases to be rare when they affect not more than 5 per 10,000 people.Since one of the main problems associated with rare diseases is poor availability of treatments, there is considerable overlap in practice with orphan disease [IATE:139134 ]"
    maladie rare
    fr
    Definition maladie affectant une proportion très faible de personnes au sein d'une population donnée Reference "Délégation générale à la langue française et aux langues de France (DGLFLF), FranceTerme, http://www.culture.fr/franceterme/result?francetermeSearchTerme=maladie+rare&francetermeSearchDomaine=0&francetermeSearchSubmit=rechercher&action=search [22.10.2018]"
    Comment "Au sein de l'UE, une maladie est dite ""rare"" lorsqu'elle affecte moins de cinq personnes sur dix mille.Source: Ibid.À ne pas confondre avec ""maladie orpheline"" qui désigne une pathologie rare ne bénéficiant pas d'un traitement efficace.Source: Conseil-FR, d'après le site du ministère français des solidarités et de la santé, ""Les maladies rares"", https://solidarites-sante.gouv.fr/soins-et-maladies/prises-en-charge-specialisees/maladies-rares/article/les-maladies-rares [22.10.2018]Voir aussi:- maladie orpheline [IATE:139134 ]- médicament orphelin [IATE:885035 ]"
  2. SOCIAL QUESTIONS|health
    líonra tagartha Eorpach um ghalair croí aimpléiseacha neamhchoitianta Reference Comhairle-GA
    ga
    LTE 'Guard-Heart' Reference Comhairle-GA
    ga
    Europäisches Referenznetzwerk für ungewöhnliche und seltene Herzkrankheiten | ERN Guard-Heart
    de
    Definition "Europäisches Referenznetzwerk für seltene und komplexe Herzerkrankungen bei Erwachsenen und Kindern in der gesamten Europäischen Union" Reference Council-DE in Anlehnung an Council-EN
    European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart | ERN Guard-Heart
    en
    Definition "European reference network for rare and complex heart diseases in adult and paediatric patients across the European Union" Reference "Council-EN, based on:ERN GUARD-Heart (20.11.2024)"
  3. SOCIAL QUESTIONS|health
    líonra tagartha Eorpach um ghalair shoithíocha ilsistéamacha neamhchoitianta Reference Comhairle-GA
    ga
    Europäisches Referenznetzwerk für seltene multisystemische Gefäßerkrankungen | VASCERN
    de
    Definition "Europäisches Referenznetzwerk für seltene Gefäßerkrankungen" Reference Council-DE in Anlehnung an Council-EN
    European Reference Network for Rare Multisystemic Vascular Diseases | VASCERN
    en
    Definition "European reference network for rare vascular diseases" Reference "Council-EN, based on:VASCERN > Who we are > About VASCERN (20.11.2024)"
  4. SOCIAL QUESTIONS|health|medical science · SOCIAL QUESTIONS|health|illness|orphan disease · SOCIAL QUESTIONS|health|pharmaceutical industry|pharmaceutical product|medicament|orphan drug
    Orphanet Reference "Orphanet (26.3.2024)"
    ga
    tairseach um ghalair neamhchoitianta agus um tháirgí íocshláinte dílleachtacha Reference Téarmeolaithe COM-GA
    ga
    tairseach le haghaidh galair neamhchoitianta agus drugaí dílleachta Reference Doiciméad inmheánach de chuid an Choimisiúin: SANTE-2024-00855 (teicneolaíocht sláinte/measúnuithe cliniciúla comhpháirteacha)
    ga
    Definition acmhainn ar líne ina gcoinnítear faisnéis a thiomsaítear faoi ghalair neamhchoitianta agus é d'aidhm leis sin feabhas a chur ar an diagnóisiú, ar an gcúram agus ar an gcóiríocht i leith othair ar a bhfuil galair neamhchoitianta, agus lena ndírítear ar fhaisnéis ardcháilíochta faoi ghalair neamhchoitianta a sholáthar agus rochtain chothrom ar fhaisnéis a áirithiú do na geallsealbhóirí, agus ina gcoimeádtar ainmníocht Orphanet um ghalair neamhchoitianta, rud is riachtanach chun go mbeadh teacht níos réidhe ar fhaisnéis faoi ghalair neamhchoitianta i gcórais faisnéise leighis agus taighde Reference "Téarmeolaithe COM-GA; arna bhunú ar: Orphanet, 'What is Orphanet?' (26.3.2024)"
    Orphanet | Portal für seltene Krankheiten und Orphan Drugs
    de
    Definition Ressource, die das Ziel verfolgt, das Wissen um seltene Krankheiten zu sammeln und zu erweitern, um so die Diagnose, Versorgung und Behandlung von Patienten mit seltenen Krankheiten zu verbessern Reference "Orphanet > Was ist Orphanet? (17.4.2024)"
    Orphanet | Orphan Diseases Network | portal for rare diseases and orphan drugs
    en
    Definition online resource which gathers and improves knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases, aiming to provide high-quality information on rare diseases, ensuring equal access to knowledge for all stakeholders and maintaining the Orphanet rare disease nomenclature (ORPHAcode), essential in improving the visibility of rare diseases in health and research information systems Reference "COM-Terminology Coordination, based on: Orphanet. 'What is Orphanet ?' (18.3.2024)"
    Comment Orphanet was established in France by the INSERM (French National Institute for Health and Medical Research) in 1997. This initiative became a European endeavour from 2000, supported by grants from the European Commission: Orphanet has gradually grown to a Consortium of 40 countries, within Europe and across the globe.